With effect from 1 January 2024 we will no longer be an active registered charity. We will, however, continue to maintain this website as a source of information about CUP. Since we registered as a charity (in England and Wales) in 2007 the CUP environment in the UK has shifted dramatically. Patients have a managed pathway, following the introduction of
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The Roche CUPISCO trial results are being presented at the European Society of Medical Oncologists conference in Spain. The abstract, which gives the details is available on our Blog. The conclusion, which will give evidential weight to support changes in UK standard of care treatment of CUP patients, supports molecularly guided therapy and shows that its use improved progression-free survival
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Now that Autumn has arrived the early birds will be thinking of Christmas cards. We have three new designs to choose from this year. View our 2023 Christmas Cards
The 6th edition (2023) of the booklet Understanding Cancer of Unknown Primary has been published by Macmillan Cancer Support. This is the booklet that we originally developed with Cancerbackup, before it became part of Macmillan. It is revised every 3 years.
Trustee Philippa McEwan had a busy November raising funds for our work. First, a coffee morning raising £970 and then a sponsored walk – The Tamsin Trail – in Richmond Park raising a further £1,130. Photos show Philippa sporting our T shirt in Richmond Park and the delicious CUP cakes from the Coffee Morning.
Health Secretary, Steve Barclay, has announced that Government will not be publishing the 10 Year Cancer Plan which was expected last year. This is hugely disappointing to the many cancer charities that have worked on its development. Instead, Government will publish an interim 5 year Major Conditions Strategy later this year, of which cancer will be only one part. In
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In conjunction with SBK we have another online event on Tuesday 7 March (09:00-15:50). This is an opportunity to look at the implications of RDCs and WGS on the patient pathway. Speakers and topics are shown here on the SBK website.
NCRI are conducting a survey to help identify the research priorities for CUP. This is not limited to clinicians. Anyone with an interest in the next steps for CUP research in the UK is invited to complete the survey. Those outside the UK are most welcome to contribute as well. The survey can be found here until 3 Feb: https://ncri.checkboxonline.com/ncri-muocup-study-group—research-priorities-survey-
Whole Genome Sequencing (WGS) becomes Standard of Care for CUP patients. Cancer of Unknown Primary (CUP) WGS in all ages and in upfront testing is included in the National Genomic Test Directory in the 31st October 2022 publication as a standalone referral indication (M226.4). The National Genomic Test Directory specifies which genomic tests are commissioned by NHS England, the patients
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