The Royal College of Pathologists have published (July 2018) their ‘dataset’ for CUP . We believe that this is a major step forward – improving significantly the ability of all pathologists, many of whom will have no prior experience of CUP, to provide guidance that helps target patient treatment.
2018 continues to be an exciting year with challenges and events coming thick & fast: – May 19/20: Aileen Orr took part in the Glasgow Nightrider, a 100k overnight cycle ride, in memory of her Mother. She then took part in The Great Women’s Run 10k in Glasgow on June 10th and raised a total of £1475 – May 20th:Read more
Paula Austin who runs The Bricklayers Arms in Shamley Green, near Guildford held a quiz night on Thursday raising £200. Paula writes: ‘Some customers in the bar last night [Friday] missed the quiz on Thursday and donated another £50 so will now be sending you a cheque for £250.00’. Many thanks to the Bricklayers and their patrons for supporting ourRead more
We were invited to present to a meeting in the EU Parliament on 26 June. MEPs Against Cancer – a group led by British MEP Theresa Griffin – are keen to drive any policy initiatives that will help the European CUP community.
Oncologists, pathologists, palliative care physicians, CUP nurses, patients, patient advocates from England, Wales, Scotland and Ireland attended Improving patient experience with your MUO-CUP service on 12 June. Topics included: developments in pathology; complex diagnostic problems; integrating palliative care; clinical trials; urgent referral pathways. The photo below shows CUP CNS Dawn Platt talking on how to implement an effective patient survey.Read more
This is the first update of 2018 and it’s shaping up to be an exciting year of challenges and events for our supporters: – April 22nd: Collette Green ran the London Marathon in memory of her father, Brian Eddy, and raised over £1140 – April 20th: Paul Barker’s Memorial Golf Day was held. Paul work tirelessly to raise awareness andRead more
OK, so this is not the most exciting topic we have ever posted but it is relevant! 25 May is the date that the new privacy laws come into effect (GDPR). You will have received many eMails from different organisations asking you to ‘opt-in’ otherwise the organization should not contact you again. We have eMailed all those on our ‘conferencesRead more
An opportunity to dust off your hiking boots and ‘Just Walk’ for charity on Saturday 12 May 2018. This is a chance to raise awareness and funds for our work while enjoying some fantastic countryside. How: Visit: https://www.just-walk.co.uk When: Saturday, 12th May 2018 Where: Goodwood Racecourse, Chichester (start & finish) and across the breathtaking South Downs in Sussex What: 10k,Read more
Patients, who are later designated with CUP, often suffer a late diagnosis because they are presenting with vague symptoms. We welcome the pilot scheme announced today, explained here. The pilot is being carried out at: North Middlesex University Hospital, University College London Hospital, Southend University Hospital, Queen’s Hospital, Royal Free Hospital, St James’s University Hospital, Airedale General Hospital, University HospitalRead more
On 7 March 2018 the National Cancer Research Institute (NCRI) held a day in London for CUP researchers looking at the future of UK CUP, and acute oncology, research. The specific objectives were to look at: Research into the optimum pathway for investigation of CUP patients Research into the optimum treatment for CUP patients Current research; priorities/gaps NCRI configuration toRead more