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CANCER OF UNKNOWN PRIMARY FOUNDATION

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11 Jan 2023

In conjunction with SBK we have another online event on Tuesday 7 March (09:00-15:50). This is an opportunity to look at the implications of RDCs and WGS on the patient pathway. Speakers and topics are shown here on the SBK website.

Category Uncategorized Author John Symons
10 Jan 2023

NCRI are conducting a survey to help identify the research priorities for CUP. This is not limited to clinicians. Anyone with an interest in the next steps for CUP research in the UK is invited to complete the survey. Those outside the UK are most welcome to contribute as well. The survey can be found here until 3 Feb: https://ncri.checkboxonline.com/ncri-muocup-study-group—research-priorities-survey-

Category Uncategorized Author John Symons
01 Nov 2022

Whole Genome Sequencing (WGS) becomes Standard of Care for CUP patients. Cancer of Unknown Primary (CUP) WGS in all ages and in upfront testing is included in the National Genomic Test Directory in the 31st October 2022 publication as a standalone referral indication (M226.4). The National Genomic Test Directory specifies which genomic tests are commissioned by NHS England, the patientsRead more

Category Uncategorized Author John Symons
11 Oct 2022

Research by Natalie Cook’s CUP group at the Christie in Manchester has shown that a significant number of provisional CUP patients can be put onto a site specific pathway for Intrahepatic cholangiocarcinoma. “By reclassifying some of those CUP patients with cancer in the liver as bile duct cancer patients, this would lead to increased treatment options and a better prognosis.Read more

Category Uncategorized Author John Symons
12 Sep 2022

Every year, during the last full week of September, we ask our supporters to help raise awareness of CUP. This year we would ask all those who have been affected by CUP now or in the past – patients, relations, friends and colleagues of patients – to tell others of this extraordinary and challenging cancer.  Although the unknown is graduallyRead more

Category Uncategorized Author John Symons
09 Sep 2022

SJK Foundation (Ireland) and Missie Tumor Onbekend (Netherlands) – two national CUP patient organisations – have organised some excellent webinars for Awareness Week on 19, 21, and 23 Sep on the theme of ‘The patient journey’. To see the details and to sign-up see this link.

Category Uncategorized Author John Symons
18 Aug 2022

The Department of Health and Social Care have announced that: Given the recent change in Secretary of State for Health and Social Care, publication of the ten-year cancer plan is on hold at the moment. We will communicate further when we have more clarity.

Category Uncategorized Author John Symons
21 Jun 2022

Some 400 attendees registered for the expert discussion on 21 June. Zoom went down shortly after the talk began but those who were already on line were rewarded with a fascinating hour. For those who were not able to join but were registered the recording will be sent. The recording can be seen on YouTube here. Comments on the sessionRead more

Category Uncategorized Author John Symons
13 Dec 2021 18 Sep 2021

There is a daily programme of webinars featuring CUP experts from around the world. Details and sign-up are shown here: https://www.worldcupawareness.org/ The UK webinar speakers for Tuesday 21 Sep at 1200 hrs UK time is shown below

Category Uncategorized Author John Symons