Whole Genome Sequencing (WGS) becomes Standard of Care for CUP patients. Cancer of Unknown Primary (CUP) WGS in all ages and in upfront testing is included in the National Genomic Test Directory in the 31st October 2022 publication as a standalone referral indication (M226.4). The National Genomic Test Directory specifies which genomic tests are commissioned by NHS England, the patients
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Research by Natalie Cook’s CUP group at the Christie in Manchester has shown that a significant number of provisional CUP patients can be put onto a site specific pathway for Intrahepatic cholangiocarcinoma. “By reclassifying some of those CUP patients with cancer in the liver as bile duct cancer patients, this would lead to increased treatment options and a better prognosis.
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Every year, during the last full week of September, we ask our supporters to help raise awareness of CUP. This year we would ask all those who have been affected by CUP now or in the past – patients, relations, friends and colleagues of patients – to tell others of this extraordinary and challenging cancer. Although the unknown is gradually
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SJK Foundation (Ireland) and Missie Tumor Onbekend (Netherlands) – two national CUP patient organisations – have organised some excellent webinars for Awareness Week on 19, 21, and 23 Sep on the theme of ‘The patient journey’. To see the details and to sign-up see this link.
The Department of Health and Social Care have announced that: Given the recent change in Secretary of State for Health and Social Care, publication of the ten-year cancer plan is on hold at the moment. We will communicate further when we have more clarity.
Some 400 attendees registered for the expert discussion on 21 June. Zoom went down shortly after the talk began but those who were already on line were rewarded with a fascinating hour. For those who were not able to join but were registered the recording will be sent. The recording can be seen on YouTube here. Comments on the session
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Our latest Annual Report and Accounts has been lodged with the Charity Commission and can be read on their site or accessed here.
There is a daily programme of webinars featuring CUP experts from around the world. Details and sign-up are shown here: https://www.worldcupawareness.org/ The UK webinar speakers for Tuesday 21 Sep at 1200 hrs UK time is shown below
Drawing on CRUK’s excellent statistics department the latest data (Incidence 2017: Mortality 2018) show incidence of CUP in the UK has once again fallen slightly at 8341 cases – some 2% of all cancers and the 15th commonest. As always, CUP is slightly higher in females (52%) and the 11th commonest cancer; for males it is the 14th commonest. Mortality
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Fundraising and awareness events are coming back to life as restrictions ease and the weather improves. We are very grateful to those taking-up these stretching challenges to support our work. Mark Larden and Tina took part part in this years Race to the Kings, 19 and 20 June, to raise money (over £3,500 before Gift Aid) in memory of Tina’s
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