Making decisions about tests, treatment, research involvement, and palliative care can be bewildering for the CUP patient. In conjunction with Sue Ryder we have developed a series of simple-to-use Patient Decision Aids to help with these difficult decisions.
The Sunday Times article of 20 Jan 2019 – below- reflects research being undertaken in Manchester, to which we have contributed some funding. The information in the article is based on a blog prepared by Cancer Research UK which gives more detail and can be seen here . A word of caution: this is a very optimistic article but the
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Category Medical
Author John Symons
The NHS Long Term Plan has now been launched which sets out the way forward for cancer services. See the summary here: Cancer and the NHS Long Term Plan In the consultation period, and in meetings with the team preparing the plan, we have pushed for genomic testing for CUP patients and it is pleasing to see in the attached
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Category Medical
Author John Symons
We are on the cusp of a new dawn for CUP patients. Research has led to new capabilities for identifying the tissue of origin of the cancer through molecular testing; and we are beginning to see the potential for finding actionable molecular targets from DNA mutations where the primary site is largely irrelevant. Our international conference in London in May
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Roche have advised today that ‘All sites in England are now actively recruiting, with the site in Wales and Scotland to follow shortly.’
It’s been a very busy summer for our supporters who’ve pulled out all the stops to raise awareness and funds: – Aug 12th: Ollie Carlisle ran a gruelling 50K ultra marathon in memory of Bev Pearce. An amazing achievement which Ollie describes as ‘a genuine challenge ’ and ‘more than double anything I’ve ever raced before, and over difficult, hilly
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Megan Young died from CUP aged 32. The poetry prize initiated by her mother, Merrilyn, was held in July for the third time. Do look at the link for more information and to see the winner’s poem. Megan Young Poetry Prize
The Royal College of Pathologists have published (July 2018) their ‘dataset’ for CUP . We believe that this is a major step forward – improving significantly the ability of all pathologists, many of whom will have no prior experience of CUP, to provide guidance that helps target patient treatment.
Category Medical
Author John Symons
2018 continues to be an exciting year with challenges and events coming thick & fast: – May 19/20: Aileen Orr took part in the Glasgow Nightrider, a 100k overnight cycle ride, in memory of her Mother. She then took part in The Great Women’s Run 10k in Glasgow on June 10th and raised a total of £1475 – May 20th:
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Paula Austin who runs The Bricklayers Arms in Shamley Green, near Guildford held a quiz night on Thursday raising £200. Paula writes: ‘Some customers in the bar last night [Friday] missed the quiz on Thursday and donated another £50 so will now be sending you a cheque for £250.00’. Many thanks to the Bricklayers and their patrons for supporting our
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