We have started a Facebook closed group for patients and carers to interact. It can be found by searching on FB for CUP patients and carers which then gives the option to apply to join the group (the only way to see the posts and interact).
UK Care Guide have an excellent infographic and guide to help break down, in simple terms, all the steps that someone needs to go through when they have lost a loved one in the UK.
Comments continue to be received about our international conference in May. The latest today from a consultant oncologist captures the sense of optimism: ‘It was really a wonderful day and it has filled us all … with lots of enthusiasm that things are moving forward in the world of CUP research.’
The latest (2016) incidence data for CUP have been made available by CRUK. They show a slight increase in new cases in comparison with 2015. In 2015 the total number of UK cases was 8,635 and in 2016 this has risen to 8,899. The increases are in England, Wales and N Ireland; there has been a fall in Scotland. The
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Supporters Update April 12th: In his memory, Paul Barker’s friends continued his annual golf day again this year sharing the proceeds of £2572 between CUP Foundation and Marie Curie 19-22 April: Joe Poolman & Tyler Davies cycled the 171 mile Great Ocean Road in Australia in support of their friend Olivia Nelson whose mother Jane had been diagnosed with CUP.
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Tony Greco was due to chair CUP 2019. He was admitted to hospital in the USA shortly before the event. We are delighted to report that he has been making excellent progress and hopes to be back at work in a few weeks.
Inspired by Transport for London’s ‘Baby On Board’ badges, cancer patient James McNaught, whilst undergoing treatment that left him exhausted, weak and gradually, unable to speak, formulated the ‘Cancer On Board’ badge idea. A chance to sit down can make a huge difference for a cancer patient. If you want to order any of these badges (they are free), the
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We held the 4th in our series of international conferences on Friday 3 May at the Royal College of Physicians in London: Cancer of Unknown Primary in the Era of Precision Medicine. We had a full house with 135 delegates and speakers. The feedback forms showed that 100% of delegates found the conference useful (55% extremely useful; 34% useful; and
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The immunotherapy trial – CUPEM – led by Dr Wasan has recruited its first patients at Hammersmith Hospital. There are two other planned sites in London: the Royal Marsden which will open by the first week of April and Guy’s and St Thomas’ which is expected to open by June 2019. It is possible additional sites may come on stream
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Making decisions about tests, treatment, research involvement, and palliative care can be bewildering for the CUP patient. In conjunction with Sue Ryder we have developed a series of simple-to-use Patient Decision Aids to help with these difficult decisions.