Oncologists, pathologists, palliative care physicians, CUP nurses, patients, patient advocates from England, Wales, Scotland and Ireland attended Improving patient experience with your MUO-CUP service on 12 June. Topics included: developments in pathology; complex diagnostic problems; integrating palliative care; clinical trials; urgent referral pathways. The photo below shows CUP CNS Dawn Platt talking on how to implement an effective patient survey.
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Category Medical
Author John Symons
This is the first update of 2018 and it’s shaping up to be an exciting year of challenges and events for our supporters: – April 22nd: Collette Green ran the London Marathon in memory of her father, Brian Eddy, and raised over £1140 – April 20th: Paul Barker’s Memorial Golf Day was held. Paul work tirelessly to raise awareness and
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OK, so this is not the most exciting topic we have ever posted but it is relevant! 25 May is the date that the new privacy laws come into effect (GDPR). You will have received many eMails from different organisations asking you to ‘opt-in’ otherwise the organization should not contact you again. We have eMailed all those on our ‘conferences
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An opportunity to dust off your hiking boots and ‘Just Walk’ for charity on Saturday 12 May 2018. This is a chance to raise awareness and funds for our work while enjoying some fantastic countryside. How: Visit: https://www.just-walk.co.uk When: Saturday, 12th May 2018 Where: Goodwood Racecourse, Chichester (start & finish) and across the breathtaking South Downs in Sussex What: 10k,
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Patients, who are later designated with CUP, often suffer a late diagnosis because they are presenting with vague symptoms. We welcome the pilot scheme announced today, explained here. The pilot is being carried out at: North Middlesex University Hospital, University College London Hospital, Southend University Hospital, Queen’s Hospital, Royal Free Hospital, St James’s University Hospital, Airedale General Hospital, University Hospital
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Category Medical
Author John Symons
On 7 March 2018 the National Cancer Research Institute (NCRI) held a day in London for CUP researchers looking at the future of UK CUP, and acute oncology, research. The specific objectives were to look at: Research into the optimum pathway for investigation of CUP patients Research into the optimum treatment for CUP patients Current research; priorities/gaps NCRI configuration to
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Category Medical
Author John Symons
Paul Barker worked tirelessly to raise awareness and funds after his CUP diagnosis. His family and friends are continuing his annual golf day, on what would have been his 50th birthday, in Cambridgeshire on 20th April 2018. Golfers and others do please give it your support! Paul Barker’s Golf Day 2018_Flyer
Following very successful events in London, Manchester and Birmingham, the next conference organized by SBK, with CUP Foundation as sponsor, moves to Bristol in June 2018. The day is designed for CUP Leads, Clinical Nurse Specialists, Oncology Consultants and other members of the MUO-CUP Team. An expert faculty will look at: – The challenges of diagnosis: when to do which
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Category Medical
Author John Symons
World Cancer Day on 4 February is an opportunity to reflect. A time to reflect on those who have lost their lives to an ‘unknown’ cancer and their surviving loved ones, who may well remain angry and feel that they were failed in the absence of a more treatable ‘known’ cancer diagnosis; and an opportunity to think of those undergoing
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Thanks to the endeavors of our many fundraisers and donors, over many years, we have been able to contribute £100,000 towards a trial to see whether immunotherapy treatment will have a beneficial impact in treating CUP patients. The first trial of its kind -possibly in the world – is scheduled to start recruiting patients in London in early Spring 2018.
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