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This page includes guidance on fundraising, how to make donations and undertake awareness-raising:
We would very much like to send you our quarterly News letter. To receive this, please enter your eMail address in the box on the right hand side of the screen. We promise not to inundate you with material: just the News four times a year, and very occasionally a separate communication about a specific event, breaking news or something like Christmas cards. We will not pass-on your details to any third parties. This is our latest edition .
We sell the lapel badge and the blue wristband for £1 each. The badge comes with a small backing card giving brief details of CUP. Many supporters have used the badges to raise awareness by selling them to their families, friends and colleagues. The embossed writing on the blue wristband reads:
If you would like to make a purchase please contact firstname.lastname@example.org with your address and order. We will charge you for postage at cost.
Every year we choose a special Christmas card and the one for 2016 is shown below (note: on the computer screen what may appear as a light blue background is closer to light green in reality). To see a larger image, click on the card. To order, please see this form.
Really useful plain cards, but with our logo and purpose on the back, that are ideal for ‘thank you’, condolence and general communications. Inky Snowdrops and Bloom by Alex McEwan for Jo’s friends:
This inspiring book is the collected poetry of a young vet, struck down by CUP, compiled by her author mother: http://www.wordsmiththebook.com/
Gift Aid. For every pound given by a UK taxpayer, HMRC add 25p if the donation is properly Gift Aided, so this is a very valuable addition. Gift Aid happens automatically through Just Giving. On the other forms and on our charity leaflets we show the details that we need filled in, if the donor chooses to add Gift Aid. We have available also on request Gift Aid envelopes which may be helpful for some events such as funerals. For collecting cash, e.g. from selling badges, we can let you have a small cardboard collection box which is packed flat but easily erected.
Sending us money. Please do not send cash through the post but cheques with a completed Gift Aid envelope, or form that show the donor(s) details and amount can be sent to: CUP Foundation, The Fold, Lower End, Cirencester, GL7 7AH. If a cheque(s) is being written please make it out to ‘CUP Foundation- Jo’s friends’. Cheques received through the post will be acknowledged with a written response. Just Giving donations receive a (rather impersonal) electronic ‘thank you’.
Particularly for ‘personal challenges’, and memorials, may we suggest that you consider making use of the Just Giving website to create your own fundraising page. This allows donations to be made quickly & securely using a credit or debit card & automatically adds Gift Aid to UK taxpayers donations. This method is very useful to reach people who do not live locally to you. Your page allows you to create your own message & shows donations as they come in. It allows you also to write & send an automated ‘Thank you’ message. For personal approaches, you may find this sponsorship form helpful.
Please contact email@example.com copied to firstname.lastname@example.org if you are planning an event. If a ‘challenge’ event we will send you a pack with a T shirt(s) and brochures included. We will also post details on the News page of our website. If you want some ‘words or phrases’ for marketing purposes or media interest you can access our current brochure electronically. There is a quick link top right of this page. Here is an example of local media being used in 2013 to raise awareness: CUP Article Jersey. If we have the details and a photo of your event we can include information in our quarterly eNews. Please send to email@example.com
To gain some ideas and guidance about fund-raising in general please see this document: Fund raising ideas.
You might like to see the short video we made for the 2012 Awareness Day. It features Jo’s sister, Philippa, and highlights some of the issues about CUP whilst using a particular approach to raising awareness.
We seek funds in, and for, the short and long term. We seek to fund small high impact projects, and in recent years have funded a pilot genetic sequencing project at Hammersmith Hospital that may help to unravel the mysteries of CUP and identify treatable mutations.
It is important to note that clinical trials costs millions of pounds and these are outside our reach. We can have a greater impact on, the equally important, social science research projects such as understanding patient and carer needs. A significant item of expenditure is the CUP conference (held in 2009, 2012, 2014) which brings together clinicians, researchers and others interested in CUP from across the world.
We run a ‘tight ship’ and keep our administrative expenses to a minimum. The Trustees and Staff are unpaid and we have no salaries. The office is run from the volunteer Director’s home and we have no costs for heat, light, office, etc. We do have some administrative costs e.g. insurance for public liability, postage and travel. We devote in excess of 97p in each pound raised to our charitable objectives. For further details of our expenditure and grants please see the bottom of this page for Annual Report links.
Our concerns are to: raise awareness of CUP, support CUP research and provide information and support to patients and carers. This may seem like an enormous task but as Chinese philosopher Lao-tzu (604 BC – 531 BC) is reputed to have said: A journey of a thousand miles begins with one step. If CUP is to be ended it will be as a result of medical and technical expertise. But the impetus for change and the imagination to do things differently will come from you and me – people affected by CUP.
“The lesson of the last 150 years in oncology is that orthodoxy was repeatedly wrong.” Siddhartha Mukherjee in The Emperor of all the Maladies: a Biography of Cancer.
This is part of our wish list:
Start the conversation! Talk to anyone you can so that they recognise that CUP exists and that it is a significant but little known phenomenon. Explain that it is a problem which is resolvable but only if there is a demand for action. It may seem a minority problem to doctors and researchers but it is hugely significant to those who are touched by it.
The number of people in the UK who die from CUP each year – about 10,000 – is roughly equivalent to 20 jumbo jets full of people. If 20 jumbo jets fell out of the sky each year over the UK because the reason could not be traced you can be sure that people would take notice and demand action!
You can see all our annual reports on the Charity Commission website. The quickest way to find our entry is to search by our charity number:1119380. These reports show our annual income and expenditure and note our achievements each year set against our objectives.